- Epilepsy Australia Ltd
The national coalition of Australian Epilepsy Associations raising our voices as one to advance the cause of all Australians living with epilepsy.
- Epilepsy Association of South Australia & Northern Territory (The Epilepsy Centre)
- Epilepsy Association of Tasmania
- Epilepsy Association of Western Australia
- Epilepsy Foundation Victoria
- Epilepsy Queensland
Children and young people
- Kids Kontact
Specialises in safety, ID wristbands, allergy alerts and tracking devices to ensure that children remain safe and easily identifiable in an emergency. Enter the code EPACT in the coupon section of the order form on their website and the Epilepsy Association ACT will receive 20% of Kids Kontact sales.
- Kuekids Australia
provides support, links and information that becomes available, especially for Australian parents of children with uncontrolled epilepsy.
- Little Poss
Epilepsy Queensland’s website for children with epilepsy
Livewire.org.au is an online community designed just for young people living with a serious illness, chronic health condition or disability, and their families. It is a safe online space where members can connect and share experiences with others who understand what they are going through.
- The Tea Room – For teenagers with epilepsy
The Tea Room is a social networking site for teenagers with epilepsy. It is co-run by Epilepsy Queensland and the Scottish Epilepsy Initiative and is a friendly space where teenagers can talk to other teenagers about anything from epilepsy to the x factor!
- Everything Epilepsy & Meningioma Mommas
An online support group for all those affected by meningioma brain tumours, also hosts a 24/7 epilepsy support group, Everything Epilepsy. Anyone is welcome to join.
Research and Treatment
- Australian Epilepsy Pregnancy Register
This a voluntary, nationwide study that is enrolling women who are currently pregnant or who have given birth recently (infants up to 6-9 months of age) in the following categories:
– Women with epilepsy taking antiepileptic medication (AEDs).
– Women taking AEDs for allied conditions.
– Women with epilepsy not taking AEDs.
- Children’s Hospital, Westmead
- Epilepsy Research Centre
- Epilepsy Society of Australia
- Genetic Epilepsy Team Australia
- The Royal Children’s Hospital, Melbourne
- Sydney Children’s Hospital Randwick
Other links of interest
- Disability ACT – Community Services
- Everyday Hero Australia: Purple Day
Build your own online fundraising page for Purple Day
- Give Now – Donate to Epilepsy ACT
- National Disability Services
- National Disability Insurance Scheme
- National Relay Service
For people who are deaf, or have speech or hearing impairments.
- About Kids Health (Epilepsy Resource Centre) – Canada
- Epilepsy Action – UK
- Epilepsy Foundation – USA
- Epilepsy Ireland
- Epilepsy New Zealand
- Epilepsy Society – UK
- International Bureau for Epilepsy
- International League Against Epilepsy – USA
- Intractable Childhood Epilepsy Alliance: ICE – USA
- LGS Foundation (Lennox- Gastaut Syndrome) – USA
- Non-Epileptic Attack Disorder – UK
- Purple Day – USA
- SUDEP Action: making every epilepsy death count – UK