Publications

Epilepsy ACT Publications

Aboriginal Resources

Epilepsy within Indigenous Australians (2004)201409081539
Developed for Epilepsy ACT by Gordon Coleman with illustrations by Kargun Fogarty (Mooj) this resources, enhanced by symbolic Aboriginal art presents a descriptive information about epileptic seizures and first aid.

To access a PDF copy of this publication click – indigenous communities

This publications is available in hardcopy for $2 (+$3 postage) To purchase please email admin@epilepsyact.org.au

Resource Kit for Aboriginal Communities (2004)
Developed by Epilepsy ACT for Epilepsy Australia, this information and resource kit has been specifically designed for Aboriginal people diagnosed with epilepsy, their families and community, to assist them with basic information about epilepsy and where to find further information and assistance to help them manage their condition.

This kit it also designed for Aboriginal and Torres Strait Islander Health WorkersIndigneous kit and other health workers working with Aboriginal and Torres Strait Islander people in a range of health settings.

This kit is available for $20 (+$5 postage) from Epilepsy ACT. To purchase a copy please email admin@epilepsyact.org.au

Children’s Resources

The following three books are available to read online from the children’s section of this website. 

Dinosaur Friends
Written with a fun rhyming manner this book tells the story of a young boy who is diagnosed with clonic-tonic seizures. The boy learns the importance of rest and taking his medication in order to continue to play with his friends.

Down, Down, Down
With fun rhyming language and colourful illustrations we learn about Jess, a young fish that lives at the bottom of the ocean. The story follows Jess as she learns about her complex-partial seizures.

To Catch a Star
With rhyming text we learn about Kelly and Malcolm’s adventures living on the moon. Kelly has absence seizures so her and Malcolm visit visit earth to see Doctor Joon. Doctor Joon explains that Kelly has epilepsy but it won’t stop her playing with Malcolm and her friends.

Driving in the ACT

Social impact of current driving regulations / guidelines on individuals and their families (2012)
Written by Bacholour of Social Work Candidate Kim O’Connall this publication gives individuals who are experiencing epilepsy, their families, carers and the community some insight into what it is like to live with epilepsy and when and how it may affect them and people around them. The publication draws from previous research to discuss common social impacts of epilepsy and driving restrictions and a survey was undertaken to investigate the current local situation. Finally it will consider how individuals with epilepsy and their families and carers could be better supported and highlights some issues that need further consideration and research. Useful contact information and additional resources are listed in the attachments, as well as the unique information about each State’s and Territories’ requirements regarding current driving regulations and obligations.

To read the full text of this publication please click here – Driving cut down [pdf]

Workplace Resource

Epilepsy and the workplace: a guide for workers and employers (2011)
Written by Caitlin Baillie as part of the ANU College of Law internship program this publication is an easy to read instruction to the legal issues relating to epilepsy and employment. It includes information for workers with epilepsy and employers on their rights and responsibilities in the workplace. It also explains the legal options available for people with epilepsy who feel they have been unfairly treated in employment matters.

To read the full text of this publication please chick here – Epilepsy and the Workplace [pdf]

Epilepsy Australia Publications

 The Epilepsy ReportJune 2014 Cover

Focusing on better community and health outcomes for people living with epilepsy, The Epilepsy Report is published twice a year with a current circulation of 10,000 distributed nationally and internationally.

Edited by Denise Chapman for Epilepsy Australia, published articles include current issues in epilepsy, medical and social research, feature interviews, international news and consumer updates.

The Epilepsy Report is a free publication and available for download from the Epilepsy Australia webpage

Epifile: an epilepsy management manualEpifile June 2013 cover 1 1B Cover

The Epifile is an epilepsy management manual developed by Epilepsy Australia for the distribution through member associations. Containing core epilepsy information for people with epilepsy, their families and carers, it also addresses specific issues relating to men, women, children, teenagers and the elderly. Lifestyle management is discussed as well as risk management. Epifile is generally acquired by talking to a counselor from any one of Epilepsy Australia’s member associations in your own state or territory where your particular concerns will be discussed and an Epifile will be tailored to meet your needs.

To obtain a copy of the Epifile please contact Epilepsy ACT on (02) 6287 4555 or email us. 

Sudden Unexpected Death in Epilepsy: continuing the conversation 2011

The book blends case studies with scientific advances to bring the issue of sudden unexpected death in epilepsy to the forefront because by learning more, we can do more. Written for anyone with an interest in epilepsy, Sudden Unexpected Death in Epilepsy continuing the global conversation is a SUDEP digest.  The collection of articles details current understanding from an array of unique perspectives, provides insight through the sharing of personal stories and explains the challenges of SUDEP around the globe.

For more information, or to order a copy please go to the Epilepsy Australia website.

For more resources, including a collection of articles please go to the Epilepsy Australia webpage or contact Epilepsy ACT if you require any specific research or resources.

Parliamentary Friends of Epilepsy Report into the Impact of Epilepsy in Australia

On 30 November 2009 The Parliamentary Friends of Epilepsy held an informal inquiry into the impact of epilepsy in Australia. Submissions were sought from interested parties, particularly patients and carers.

On 11 March 2010, Jill Hall, Member for Shortland, and Senator Gary Humphries tabled the report in Parliament.

Relevant reports are available below.

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